Door annelies_verachtert op Di, 01/12/2015 - 00:00
In onze Westerse maatschappij overheerst de overtuiging dat het noodzakelijk is voor koppels om met elkaar te praten over de moeilijke gevoelens wanneer ze geconfronteerd worden met het verlies van een kind aan kanker. Dit “spreek-gebod” wordt gevoed door de psychosociale hulpverlenersliteratuur en de media. Nochtans ervaren vele ouders dit spreken als erg pijnlijk, en vaak zelfs als zinloos. Met ons onderzoek wilden we dit proces van spreken en niet spreken van ouders beter begrijpen.
Door annelies_verachtert op Di, 01/12/2015 - 00:00
Een kankerdiagnose kan gevolgen hebben op verschillende levensdomeinen en beïnvloed zowel het fysieke als psychosociaal welzijn. Om kwalitatieve zorg te kunnen bieden, vereist deze een goede afstemming op de beleving en zorgnoden van de patiënt en zijn dierbaren. Het Cancer Rehabilitation Evaluation System (CARES) is een uitgebreid quality of life (QOL) en zorgnoden assessment instrument. In een mixed-method studie worden de psychometrische kwaliteit en praktische bruikbaarheid van de Vlaamse versie onderzocht.
Objective: Fatigue is among the most distressing symptoms across the breast cancer continuum. However, little is known about the factors contributing to long-term persisting fatigue. Therefore, we explored determinants of long-term physical, affective, and cognitive fatigue in a prospective cohort of breast cancer patients.
Objective: Fatigue is the most frequently occurring and distressing symptom in patients with advanced cancer, caused by multiple factors. Neither a specific histological diagnosis of malignancy nor the type of anticancer treatment seem to be strongly related to fatigue, which support the idea that other factors may play a role. This study investigated to what extent the model of fatigue-perpetuating factors that is known for cancer survivors was applicable for patients with advanced cancer.
Objective: A randomised controlled trial (RCT) demonstrated that cognitive behaviour therapy (CBT) for fatigue during curative cancer treatment was effective shortly after cancer treatment. This study aimed to identify which patient characteristics predict fatigue improvement after CBT. In addition, the long‐term effectiveness was investigated.
Background: The Distress Thermometer (DT) has been used in psycho-oncology research across the globe and has been recommended as a clinical tool to be used routinely in cancer settings to detect clinically significant distress. We sought to characterize the translation and validation of the DT in cancer patients in different countries and cultures and summarize how the translated versions function to detect clinically significant distress.
Objective: In a previous study, we found that patients who were offered the possibility of participation in a clinical trial had unexpressed concerns and fears that prevented them from making free or fully knowledgeable choices about their trial participation. In a selected population of patients who were offered participation in a phase I trial, we prospectively investigated whether a face-to-face discussion about their unexpressed fears might lead to a more conscious decision about whether to accept/refuse participation in the trial.
